Nancy Mairs describes herself as crippled. She is affected Multiple Sclerosis--significant aspects of her life. Upon first reading her explanation regarding crippled, I cringed. Childhood calls of "crippled" returned in an instant. Mairs was clear. She was not--she is not--prescribing the crippled label to all whose lives are in some way different from "normal," whatever "normal" is.
I do not aspire to crippled certification, nor to being a cripple. Yet, I respect her use of the label. I understand the moment's hold it has on the body--on the mind. Without aspiring to be crippled--to be a cripple--I must not run away, on my way to a different word, from the moment when crippled is the precise word that defines my moment's state. Never did I imagine I would make such a statement about crippled, yet, it describes my current understanding.
I am Patricia Ann Thorsen. My family, my friends, and I call my self "Patty." Loss of stamina--loss of muscle tone--have brought me to stages I call physically challenged, and mobility impaired. Yet, those terms do not encompass sufficiently the physical parts that are due to my cerebral palsy, and osteoarthritis. I, like many people of a certain age, grew up as crippled, then handicapped, and then disabled. I still describe the physical aspects, which have informed my spiritual self--my entire being--as disabled. I do not mean to imply that disabled suffices to describe my entire being.
I do need to be quite clear about my jigsaw puzzle pieces--crippled, handicapped, physically challenged, mobility impaired, and disabled. Other jigsaw puzzle pieces well may enter my vocabulary--wheelchair user, wheelchair bound, confined to a wheelchair. I do not think the latter two will define me, when I do get a wheelchair, and begin to use it. Yet, in matter of fact, they will. I pray that I will not run from the words before I become an intimate partner with my wheelchair--if she ever comes:) This must be a journey, if I am not to fall victim to a wheelchair.
I have no idea where this journey is headed--where I will travel. Just as I had no idea of where I would arrive at the end of this posting, when I started writing it.
I will reflect on our fast-paced, deadline-driven world. As a Universalist, I learned that there is good to be found in all faith traditions. As a practicing Catholic, prayerful, reflective individuals inspire me. My prayer is simple. May we live each day in awe--in wondrous awe.
Word Verification...Accessibility...
Spamming necessitates the temporary use of "captchas," which are more commonly known as "word verification." The childhood act of spamming leads me to take this action temporarily.
I am well aware, and saddened by the fact, that while captchas filter out--thwart--spammers, they also make the act of making comments impossible for individuals who use screen readers.
Be assured, I am working to rectify that situation.
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