My left hand is my life's blood. It is the vehicle I use to craft words, the tool I use to live. My right hand has never served me. She never will. I know that. Blame is not for me to assign. Anger is not mine to wield. My right hand has never served me as others' have.
This week, a gradual diminishment--a lifelong fear--came to a head. I made progress to the outer world. Not by others misassigning it. I didn't misassign it either. Rather, I rallied the consolation I need.
A mere appointment for hand therapy, hand x-rays, and a neck MRI did not deliver this week to me...not alone.
Every 18 months or so, I receive a questionnaire to reauthorize my long-term disability insurance. A formality perhaps. Yet, this time it hit me hard--it hits me in the gut. She pulls no punches.
I have forgotten the sound of my left hand's voice propelling me up out of bed in the morning. Did she ever speak? Have I lost my hearing? Am I deaf to her call for help? How long has she--how long have they--been gone?
Did I abuse my left had so much--with such bravado--that I have lost her forever?
Will remorse...a contrite heart...a confessing of my wrongful pride...be enough that my hand may be entrusted to my service?
Voicing that thought through my still-working fingers is embarrassing. Am I losing dignity as I stand aside of my body?
I hold on for dear life in the bathtub as I pull my body to a standing position after bathing myself. Will this be the time I will lose my grip and fall?
The time for contrition has come...a shower/bath bench. I have looked from afar. This week's questions--the questions are served by only one answer. I confess a bit of vanity remains. With Amazon.com's hand to hold mine, soon I will be the proud owner of a reasonably-priced teak shower/bath bench.
I mourn a body--my body. Is it mine to blame? Is it mine to wield anger at because it is not serving me.
I must serve my body regardless of how it serves me.
Thirty-two years ago I was baptized--I joined the Catholic Church. Through friends, I learned it was more than possible to blend intellect into faith into my being. Skeptics to that blending asked, "But...resurrection...that just doesn't make any sense! Do you believe in resurrection? Do you believe in The Resurrection?"
I did not know I did not understand what words to utter.
Time has passed....years have elapsed....life has changed me...life has changed my body....much over many years has made now sense at all.
Do I understand resurrection? Do I believe in resurrection?
No. I must. I am a woman of faith, I am a woman of hope. I am a woman of love. I am a woman of belief.
Do I understand The Resurrection? Do I believe in The Resurrection.
No. I breathe seeking to believe what I do not understand.
I mourn a body--my body. I mourn a bath--the loss of a bath. I was always a woman of a shower. So, why am I mourning? I seek understanding that has yet to be delivered to me.
I mourn a body--my body.
I will reflect on our fast-paced, deadline-driven world. As a Universalist, I learned that there is good to be found in all faith traditions. As a practicing Catholic, prayerful, reflective individuals inspire me. My prayer is simple. May we live each day in awe--in wondrous awe.
Word Verification...Accessibility...
Spamming necessitates the temporary use of "captchas," which are more commonly known as "word verification." The childhood act of spamming leads me to take this action temporarily.
I am well aware, and saddened by the fact, that while captchas filter out--thwart--spammers, they also make the act of making comments impossible for individuals who use screen readers.
Be assured, I am working to rectify that situation.
Showing posts with label betrayal. Show all posts
Showing posts with label betrayal. Show all posts
Friday, April 11, 2014
Tuesday, July 24, 2012
My Handwriting...My Spirit...
I see your face before me--barely recognizable. Not because of pen scratchings, as some might think. No, I am surprised by how far we have drifted apart--in still waters. My spirit. Your body--of letters, of words.
Not a divorce. Not bitter. Not amicable. Just an imperceptible drifting in still waters.
Not an annulment. Our partnership. I seek no clean break. No erasure. I seek no space for a new bridegroom.
I seek not sole custody of our children. Our children. Conceptions of my spirit borne of your fingers, --of your hands.
I protect our creatures--our creations--with block printing. I intend no defensiveness. Yet, no one can take me past my blind spot.
Tell me. Show me. Your handwriting. Others' handwriting.
Where does legibility lie? Where does readability rest?
I must reconcile with you. I must revel in time perched on my bed with pen in hand, and paper before me. I know how to type. I love touching keys. Yet, handwriting touches more than my hands--he touches my spirit. He is more than an "it," he is a "he."
Not a divorce. Not bitter. Not amicable. Just an imperceptible drifting in still waters.
Not an annulment. Our partnership. I seek no clean break. No erasure. I seek no space for a new bridegroom.
I seek not sole custody of our children. Our children. Conceptions of my spirit borne of your fingers, --of your hands.
I protect our creatures--our creations--with block printing. I intend no defensiveness. Yet, no one can take me past my blind spot.
Tell me. Show me. Your handwriting. Others' handwriting.
Where does legibility lie? Where does readability rest?
I must reconcile with you. I must revel in time perched on my bed with pen in hand, and paper before me. I know how to type. I love touching keys. Yet, handwriting touches more than my hands--he touches my spirit. He is more than an "it," he is a "he."
Sunday, April 29, 2012
A Shared Ride into the Unknown.
This week, I saw
An intimate--not of my body,
An intimate of my life.
Ravaged. Robbed. Quaking. Troubled. Resigned. Disturbed.
Ravaged steadiness.
Stolen dignity.
Quaking confidence.
Trembling, troubled--disturbed--future.
Resigned.
Our causes differ. Our training--our preparation--from God differs.
Yet, we share an aimless search for the moving targets.
Parkinson's Disease....Osteoarthritis...
They differ in landscape.
Yet, they share--we share--
A roller coaster ride.
Not a steady demise from the sure footing of youth,
No, we share
An unknown ride on a track with hidden, unscheduled twists and turns.
We share a ride
Toward an unknown destination,
At an unknown arrival time.
An intimate--not of my body,
An intimate of my life.
Ravaged. Robbed. Quaking. Troubled. Resigned. Disturbed.
Ravaged steadiness.
Stolen dignity.
Quaking confidence.
Trembling, troubled--disturbed--future.
Resigned.
Our causes differ. Our training--our preparation--from God differs.
Yet, we share an aimless search for the moving targets.
Parkinson's Disease....Osteoarthritis...
They differ in landscape.
Yet, they share--we share--
A roller coaster ride.
Not a steady demise from the sure footing of youth,
No, we share
An unknown ride on a track with hidden, unscheduled twists and turns.
We share a ride
Toward an unknown destination,
At an unknown arrival time.
Tuesday, April 10, 2012
A Keen Ear. An Accommodating Spirit.
Little scares me.
Fearless I am not. Fear I do.
Osteoarthritis. Puffy fingers. Inflamed tissues.
Some have knobby knees. I have knobby knuckles.
I fear not the appearance. Such is vanity--pure vanity.
I fear the knobby knuckles--its killing paralysis.
I fear loss. I fear loss of my voice--loss of my voice through my left hand. I fear not the loss of my right hand--the loss of my right hand as the instrument of my voice. My right hand has never had such muscle power.
My osteoarthritis affects my left hand, my left hip, and my right ankle. God only knows as to its selectivity within my body.
I do not ask--I have never asked--"Why me?" I abhor that question. What possible answer could serve anyone or any good end.
Rather, I ask, "What lesson am I to be learning."
I take this as no punishment for any action I have taken. Some, extreme in their thinking, take that tack. I never have. I never will.
Rather, I ask, "What preparation am I being called to make?"
A lifetime ago my answer to a call seems. Just one year ago, I was counselled to look ahead,
"Think of your needs beyond the next year--beyond the next five years. I advise you to get a power wheelchair with a joystick on your left armrest. I advise you to get a head rim. At the point when you need it, a head rim will control the movement of your chair when you cannot."
I do not torture myself--I cannot--with the prospect of using the head rim. Yet, I know that I have learned that lesson--made that preparation.
Osteoarthritis. My left hip? A simple four-legged cane. Common sense born of experience--carry no heavy packages, such as groceries, any distance. A fairly easy solution. For vanity, two canes. One is multiple shades of dark blue. The other is colored in shades of brown. It looks like wood. One must be color-coordinated, of course. Living alone, one must be prepared. Though not needed today, I need to have the tools at hand--the tools for as independent a life as is possible.
Osteoarthritis. My right ankle. Zoomer, my power wheelchair, is my antidote. Should she not be enough, I have been told that it is a matter of time--ten years perhaps--that I might need ankle surgery, an ankle replacement, perhaps.
Osteoarthritis. I do my best not to torture myself with eventualities. Osteoarthritis is not a condition of steadiness or control. Osteoarthritis is an amoeba, a chameleon. Some days, people may wonder, "I don't understand. I saw her in her wheelchair yesterday, now today she is walking just fine." I wonder too.
Osteoarthritis. A snake, who lurks in the bushes, waiting to catch me unawares.
Osteoarthritis. Exercise. Not a physical cure. But a wellspring of mental, and emotional energy. Exercise. A keeping at bay of inflammation's paralysis.
Osteoarthritis. My right ankle. My left hand. My left hip. My color-coordinated canes. Exercise. Osteoarthritis.
Osteoarthritis. A keen ear. An accommodating spirit. Osteoarthritis.
Fearless I am not. Fear I do.
Osteoarthritis. Puffy fingers. Inflamed tissues.
Some have knobby knees. I have knobby knuckles.
I fear not the appearance. Such is vanity--pure vanity.
I fear the knobby knuckles--its killing paralysis.
I fear loss. I fear loss of my voice--loss of my voice through my left hand. I fear not the loss of my right hand--the loss of my right hand as the instrument of my voice. My right hand has never had such muscle power.
My osteoarthritis affects my left hand, my left hip, and my right ankle. God only knows as to its selectivity within my body.
I do not ask--I have never asked--"Why me?" I abhor that question. What possible answer could serve anyone or any good end.
Rather, I ask, "What lesson am I to be learning."
I take this as no punishment for any action I have taken. Some, extreme in their thinking, take that tack. I never have. I never will.
Rather, I ask, "What preparation am I being called to make?"
A lifetime ago my answer to a call seems. Just one year ago, I was counselled to look ahead,
"Think of your needs beyond the next year--beyond the next five years. I advise you to get a power wheelchair with a joystick on your left armrest. I advise you to get a head rim. At the point when you need it, a head rim will control the movement of your chair when you cannot."
I do not torture myself--I cannot--with the prospect of using the head rim. Yet, I know that I have learned that lesson--made that preparation.
Osteoarthritis. My left hip? A simple four-legged cane. Common sense born of experience--carry no heavy packages, such as groceries, any distance. A fairly easy solution. For vanity, two canes. One is multiple shades of dark blue. The other is colored in shades of brown. It looks like wood. One must be color-coordinated, of course. Living alone, one must be prepared. Though not needed today, I need to have the tools at hand--the tools for as independent a life as is possible.
Osteoarthritis. My right ankle. Zoomer, my power wheelchair, is my antidote. Should she not be enough, I have been told that it is a matter of time--ten years perhaps--that I might need ankle surgery, an ankle replacement, perhaps.
Osteoarthritis. I do my best not to torture myself with eventualities. Osteoarthritis is not a condition of steadiness or control. Osteoarthritis is an amoeba, a chameleon. Some days, people may wonder, "I don't understand. I saw her in her wheelchair yesterday, now today she is walking just fine." I wonder too.
Osteoarthritis. A snake, who lurks in the bushes, waiting to catch me unawares.
Osteoarthritis. Exercise. Not a physical cure. But a wellspring of mental, and emotional energy. Exercise. A keeping at bay of inflammation's paralysis.
Osteoarthritis. My right ankle. My left hand. My left hip. My color-coordinated canes. Exercise. Osteoarthritis.
Osteoarthritis. A keen ear. An accommodating spirit. Osteoarthritis.
Saturday, April 7, 2012
Betrayal of My Body...Stolen Dignity
Selective amnesia. I just noticed two posts in a row addressed a connection I see between health insurance, and auto insurance. Though I feel a tad guilty for abusing the privilege of the precious time we are given each day, the two successive posts do speak to a larger truth about my daily life. Most of my life, I have tried to stay abreast of world affairs, and the nuances of current affairs on the national, and local levels of government.
Since I stopped working due to my cerebral palsy, and osteoarthritis, I have become keenly aware of inner calm--the priority, above all else, that my pursuit of inner calm must take. My neurologist diagnosed that I have what is known as "intentional tremors." Throughout my life, my left hand has been the powerhouse that has muscled me through college, a master's program, a 24-year career at a legal publishing company, and through living independently. I have never had full use of my right hand, so, not until three years ago did I even question the role that my left hand plays in my life. A friend, who has cerebral palsy affecting use of her right hand, and I have often said that we were frightened of something ever happening to our left hands.
Then, July 8, 2009, the life as I had known it, changed radically. Optimist that I always have been, I can say that the ending of my career in the paid workforce made possible the diagnosis of an unknown, frightening tremor in my left hand and arm. The only possibility to explain my tremors seemed to be Parkinson's Disease. It was not. It may sound strange, but, being told that I had--that I have--intentional tremors enabled me to determine how to live with it.
Intentional Tremors.
At its core, intentional tremors are shaking that becomes more intense the more a person with them tries to do a given task. Three tasks come to mind. Eating. Drinking. Handwriting. To some, reasonable accommodation is a term that describes a central concept within the Americans with Disabilities Act of 1990. To me, reasonable accommodation is my intimate. I try not to succumb to stolen dignity--the betrayal of my body.
Drinking. Reasonable accommodations took time. Straws. But, not just any straws. With any reasonable accommodation, there must be a reasonable amount of fun, without the bendable, store-bought disposable straws, or boring straws found in catalogs for individuals far older than I. To that end, I found colorfully-ribboned straws. I do not want to be consumed by a body that confines me to a world outside the vibrancy life offers.
Eating. Strange though it may sound, eating in public is truly humbling. While drinking may be reasonably accommodated, eating in public is much trickier. I have never been much of a soup aficionado. Thank God.
Forks are my friends. With them, I have a half a chance with food. With the exception of Breyer's vanilla ice cream, spoons are a slippery slope to use. Knives are fairly useless, not obstacles, not my enemies, just benign tools.
Handwriting.
For a lifetime, my handwriting--its readability--has been a bone of contention.
My high school teacher said of my homework, "I know it is from you, but, I have no idea what it says." Ouch! That hurt. I loved--I love--to write. That hurt.
So, in some ways, handwriting has been less traumatic, or less of a new trauma with which to cope, and adjust. I learned to type one-handed in high school. Technology has made available technology that I may use one day should my left hand give up. I am in no rush. Typing--or the worlds it opens--brings enormous joy. If need be I will learn to use a program called Dragon Naturally Speaking.
Dragon Naturally Speaking does not ameliorate a very fundamental loss. At Christmastime, receiving cards and letters is enveloped in something as special as the letter. The handwriting of a friend, or a family member engenders emotions far beyond that which is ever conveyed. I may be presumptuous to believe that others feel the same of me or my written communication.
Yet, the pain of the significant loss of my handwriting due to my intentional tremors runs deep. No one can take from me my signature. I do not fear identity theft:) No one can duplicate my handwritten signature.
I could torment myself by focusing on any of these realities. I cannot run from them, literally, or figuratively. Call me a Pollyanna, if you must. Yet, I can concentrate my energies on my signature abilities, gifts, passions, and people in my life. Optimism. Humor. Purpose. My survival skills. My pathway to inner calm--inner peace. I am no saint. One look at my bedroom can tell you that.
Essential to pursuing passions is filtering out all of the excess noise that surrounds hot button issues. Essential to pursuing my passions is in concentrating on what is truly life-giving. I cannot engage myself in--embrace a world that offers no receptiveness to the nuances of living vibrantly.
Since I stopped working due to my cerebral palsy, and osteoarthritis, I have become keenly aware of inner calm--the priority, above all else, that my pursuit of inner calm must take. My neurologist diagnosed that I have what is known as "intentional tremors." Throughout my life, my left hand has been the powerhouse that has muscled me through college, a master's program, a 24-year career at a legal publishing company, and through living independently. I have never had full use of my right hand, so, not until three years ago did I even question the role that my left hand plays in my life. A friend, who has cerebral palsy affecting use of her right hand, and I have often said that we were frightened of something ever happening to our left hands.
Then, July 8, 2009, the life as I had known it, changed radically. Optimist that I always have been, I can say that the ending of my career in the paid workforce made possible the diagnosis of an unknown, frightening tremor in my left hand and arm. The only possibility to explain my tremors seemed to be Parkinson's Disease. It was not. It may sound strange, but, being told that I had--that I have--intentional tremors enabled me to determine how to live with it.
Intentional Tremors.
At its core, intentional tremors are shaking that becomes more intense the more a person with them tries to do a given task. Three tasks come to mind. Eating. Drinking. Handwriting. To some, reasonable accommodation is a term that describes a central concept within the Americans with Disabilities Act of 1990. To me, reasonable accommodation is my intimate. I try not to succumb to stolen dignity--the betrayal of my body.
Drinking. Reasonable accommodations took time. Straws. But, not just any straws. With any reasonable accommodation, there must be a reasonable amount of fun, without the bendable, store-bought disposable straws, or boring straws found in catalogs for individuals far older than I. To that end, I found colorfully-ribboned straws. I do not want to be consumed by a body that confines me to a world outside the vibrancy life offers.
Eating. Strange though it may sound, eating in public is truly humbling. While drinking may be reasonably accommodated, eating in public is much trickier. I have never been much of a soup aficionado. Thank God.
Forks are my friends. With them, I have a half a chance with food. With the exception of Breyer's vanilla ice cream, spoons are a slippery slope to use. Knives are fairly useless, not obstacles, not my enemies, just benign tools.
Handwriting.
For a lifetime, my handwriting--its readability--has been a bone of contention.
My high school teacher said of my homework, "I know it is from you, but, I have no idea what it says." Ouch! That hurt. I loved--I love--to write. That hurt.
So, in some ways, handwriting has been less traumatic, or less of a new trauma with which to cope, and adjust. I learned to type one-handed in high school. Technology has made available technology that I may use one day should my left hand give up. I am in no rush. Typing--or the worlds it opens--brings enormous joy. If need be I will learn to use a program called Dragon Naturally Speaking.
Dragon Naturally Speaking does not ameliorate a very fundamental loss. At Christmastime, receiving cards and letters is enveloped in something as special as the letter. The handwriting of a friend, or a family member engenders emotions far beyond that which is ever conveyed. I may be presumptuous to believe that others feel the same of me or my written communication.
Yet, the pain of the significant loss of my handwriting due to my intentional tremors runs deep. No one can take from me my signature. I do not fear identity theft:) No one can duplicate my handwritten signature.
I could torment myself by focusing on any of these realities. I cannot run from them, literally, or figuratively. Call me a Pollyanna, if you must. Yet, I can concentrate my energies on my signature abilities, gifts, passions, and people in my life. Optimism. Humor. Purpose. My survival skills. My pathway to inner calm--inner peace. I am no saint. One look at my bedroom can tell you that.
Essential to pursuing passions is filtering out all of the excess noise that surrounds hot button issues. Essential to pursuing my passions is in concentrating on what is truly life-giving. I cannot engage myself in--embrace a world that offers no receptiveness to the nuances of living vibrantly.
Tuesday, August 30, 2011
Epilepsy Chronicles: Precursory Shakiness
Honestly, I don't know if what I am about to describe is germane to the Epilepsy Chronicles. I think it is. My thoughts, words, and descriptions deal with brain damage most directly, moreso than epilepsy per se.
I work very hard to stay as calm as is possible--humor, empathy, patience, among other attributes that elude me. These attributes may be seen as laudable, and, in one sense, they may be. Yet, there is a neurological basis that makes these attributes essential. I am not a doctor. I have not studied neurology, or any scientific discipline that might offer me insight.
I can quantify the dosages of anticonvulsants I am prescribed to tame the extra electrical activity in my brain--milligrams. I can quantify the level of anticonvulsants in my bloodstream, which are determined by a blood test--a therapeutic blood level range. Based on my weight, at least, there is a numeric scale established. If the therapeutic blood level is too low, my experience has been that more medication is prescribed. The opposite is true, too. In my experience, blood levels that are too high on that scale lead doctors to prescribe a higher dosage of medications. Sometimes, an altogether different anticonvulsant is prescribed.
Yet, I cannot quantify the threshold I have for anger, and frustration, which leads to shakiness of my whole body--I cannot quantify it for myself or for others. I recognize it myself. All I know to do is to cry, and then, isolate myself until my jangled nerves are tamed, and my body is steadied physically. The crying is the cleansing agent essential to taming the extra electrical activity in my brain.
Compounding my own response, I know that the apologies of other people, well-intended though I know they are, only exacerbate my initial response. Trying to be rational long enough to isolate myself for my necessary cry, and quiet time is extremely difficult. I know that a part of that quiet means removing any activities that I know will involve further neurological agitation. I try to be rational, so as to explain that I can withstand some tension, frustration, and anger. Yet, my rational efforts are useless. My nervous system has been hijacked such that being physically steady is next to impossible.
What I have just described is not a seizure, as I understand it, after having lived with epilepsy for more than 40 years. My description today is fresh to my life--fresh to this moment. After anticipating a personal training session for several weeks--a session to identify further efforts I may take to strengthen my arms, hands, and legs--I met with tremendous disappointment, frustration, and anger that a perfectly understandable mixup in appointment times occurred. Not knowing precisely what to ask for to reschedule--what specific terms to use (a neurosis of mine)--my neurological response is intensified.
I need peace--inner peace, calm, perspective, and determination to reclaim goals I know have been strengthening me, irrespective of reliable help I expected, and hoped I would be given today. I need insight. Am I merely making an excuse for unnecessary, irrational behavior, or is there some credibility to my thoughts--my descriptions?
I work very hard to stay as calm as is possible--humor, empathy, patience, among other attributes that elude me. These attributes may be seen as laudable, and, in one sense, they may be. Yet, there is a neurological basis that makes these attributes essential. I am not a doctor. I have not studied neurology, or any scientific discipline that might offer me insight.
I can quantify the dosages of anticonvulsants I am prescribed to tame the extra electrical activity in my brain--milligrams. I can quantify the level of anticonvulsants in my bloodstream, which are determined by a blood test--a therapeutic blood level range. Based on my weight, at least, there is a numeric scale established. If the therapeutic blood level is too low, my experience has been that more medication is prescribed. The opposite is true, too. In my experience, blood levels that are too high on that scale lead doctors to prescribe a higher dosage of medications. Sometimes, an altogether different anticonvulsant is prescribed.
Yet, I cannot quantify the threshold I have for anger, and frustration, which leads to shakiness of my whole body--I cannot quantify it for myself or for others. I recognize it myself. All I know to do is to cry, and then, isolate myself until my jangled nerves are tamed, and my body is steadied physically. The crying is the cleansing agent essential to taming the extra electrical activity in my brain.
Compounding my own response, I know that the apologies of other people, well-intended though I know they are, only exacerbate my initial response. Trying to be rational long enough to isolate myself for my necessary cry, and quiet time is extremely difficult. I know that a part of that quiet means removing any activities that I know will involve further neurological agitation. I try to be rational, so as to explain that I can withstand some tension, frustration, and anger. Yet, my rational efforts are useless. My nervous system has been hijacked such that being physically steady is next to impossible.
What I have just described is not a seizure, as I understand it, after having lived with epilepsy for more than 40 years. My description today is fresh to my life--fresh to this moment. After anticipating a personal training session for several weeks--a session to identify further efforts I may take to strengthen my arms, hands, and legs--I met with tremendous disappointment, frustration, and anger that a perfectly understandable mixup in appointment times occurred. Not knowing precisely what to ask for to reschedule--what specific terms to use (a neurosis of mine)--my neurological response is intensified.
I need peace--inner peace, calm, perspective, and determination to reclaim goals I know have been strengthening me, irrespective of reliable help I expected, and hoped I would be given today. I need insight. Am I merely making an excuse for unnecessary, irrational behavior, or is there some credibility to my thoughts--my descriptions?
Friday, July 22, 2011
Spirituality of the Human Body
Respect. Body Parts.
What on earth do these two phrases have in common? Contrary to what you may think, a great deal.
But, before I go further, let me establish what I will not be addressing. First, respect--respect for life--in its common parlance is beyond my call--abortion. I have my views. I respect those of other individuals with differing views than mine. I am open to expressing, and exchanging those perspectives. Yet, my call is to convey my thoughts in a different direction.
Respect for life--respect for the life I have been given to live. That is my call. That is what I pray I will voice today. Yet, that is a broad, unwieldy scope to address.
Body parts. Body parts? Yes, body parts. How is that remotely connected to respect for the life I have been given to live?
Once again, let me establish what I will not address--what I do not mean. I do not drive. I have no knowledge of auto mechanics--I have no knowledge of automobile body parts. That is not my call. I am called to a different direction. I am called to convey my thoughts regarding human body parts.
Private parts. Betrayal. Disability.
I am not writing about private parts, per se. The term is understood--there is an established definition of the term. I do want to include the term in the context of our human body parts. I have never heard reference to, much less definition of what might be called public parts--public human body parts.
We have no understanding of how our bodies serve the rest of us--our mind, and spirit. We do not attend ourselves to how we honor our body parts. How do we serve our body parts?
In recent years, I have been called to respond to these questions. Until recent years, my right hand did little to serve me. Never have I had, or will I have fine motor skills in my right hand. Never have I known any other way to live, so that has required little adjustment of me.
My right ankle, and my left hand are another matter entirely. Osteoarthritis in my right ankle caused me to ask--how does my ankle serve me? It took many months for me to reconcile the fact that my right ankle could not serve me.
My left hand has been my lifelong workhorse. She has been called to make up for the many times when my right hand could be of no service to me. I am scared by little. Yet, the onset of what I now know to be intentional tremors in my left hand rendered me speechless--a feat for anyone who knows me. Intentional tremors. The more I intend to do a given task when I am nervous, the shakier my left hand becomes.
Intentional tremors made essential the honoring of my body parts, and their service to me. I took for granted that my left hand would be at my service, at full strength, throughout my life to meet whatever need I had. Intentional tremors called my right arm and hand to service, as a steadying force.
Intentional tremors were the sign of the first part of spirituality of the body--spirituality of my body. I had to identify--I had to come to terms with--what my body parts could do. How could my body parts serve me? That was the first step.
Honoring my body parts. What does that mean? What does it call me to do?
When I honor my body parts, I must humble myself. I must confess, "What is it that my body part can no longer do? Honoring my body parts, committing myself to confession is not the end. It is the second of a three-step process that continues throughout our lives as we age.
We argue about terms regarding people whose bodies do not function as most people's bodies do. Yet, we have not elevated our understanding to a betrayal of our human body parts to our minds, and spirituality of the human body--the spirituality of our human body. The closest example of spirituality of the human body may be found in the writing of theologian Jean Vanier. If you have never read his writings, I commend him to you.
But, the writing of Jean Vanier does not go far enough. Or, how we read Jean Vanier does not challenge us to examine our own bodies as worthy of having spirituality appended to it. We can separate his comments and compartmentalize them as applying to the residents of L'Arche, and no one else. Whenever we receive communion, we speak of the Body of Christ. Yet, we do not bring our human body to communion with us.
Clinical inventory of our body parts. Physicals, medical tests, and other medical examinations require of us little more than to go skin deep. That is, in and of themselves. Yet, if we are wholly attuned to our human body parts, we are called to go much deeper--far deeper than skin deep.
Glorification of the body. Glorification of the body may be found in two different places--in the media, and in fine art. Glorification of the body may have positive or negative impacts in the media or in fine art. Both need our attention--our open-mindedness.
Spirituality of the human body...spirituality of the human being.
How can we ascend to--advance to--a spirituality of our body parts--a spirituality of our human body-- if we separate our human body as we enter the door of the church, or if we separate the whole notion of spirituality when we open the door to leave the church?
Can we read Julian of Norwich and choose to engage in some form of spirituality regarding our human body? If we accept the invitation Julian of Norwich offers us, can we develop a spirituality of our human being? I am not saying that it is necessary to go as extreme as Julian did. That is not the point. .Yet, are we willing to go further than we have gone up until now? I continue to press the issue, because I believe it is possible--it is essential.
Respect. Respect for life. Respect for the life I have been given to live. How does my body serve me? How may I honor my body? How may I serve my body, so as to preserve and honor her gift--her gifts? Am I willing to commit myself to pursuing a spirituality of my human body--a spirituality of my human being?
What on earth do these two phrases have in common? Contrary to what you may think, a great deal.
But, before I go further, let me establish what I will not be addressing. First, respect--respect for life--in its common parlance is beyond my call--abortion. I have my views. I respect those of other individuals with differing views than mine. I am open to expressing, and exchanging those perspectives. Yet, my call is to convey my thoughts in a different direction.
Respect for life--respect for the life I have been given to live. That is my call. That is what I pray I will voice today. Yet, that is a broad, unwieldy scope to address.
Body parts. Body parts? Yes, body parts. How is that remotely connected to respect for the life I have been given to live?
Once again, let me establish what I will not address--what I do not mean. I do not drive. I have no knowledge of auto mechanics--I have no knowledge of automobile body parts. That is not my call. I am called to a different direction. I am called to convey my thoughts regarding human body parts.
Private parts. Betrayal. Disability.
I am not writing about private parts, per se. The term is understood--there is an established definition of the term. I do want to include the term in the context of our human body parts. I have never heard reference to, much less definition of what might be called public parts--public human body parts.
We have no understanding of how our bodies serve the rest of us--our mind, and spirit. We do not attend ourselves to how we honor our body parts. How do we serve our body parts?
In recent years, I have been called to respond to these questions. Until recent years, my right hand did little to serve me. Never have I had, or will I have fine motor skills in my right hand. Never have I known any other way to live, so that has required little adjustment of me.
My right ankle, and my left hand are another matter entirely. Osteoarthritis in my right ankle caused me to ask--how does my ankle serve me? It took many months for me to reconcile the fact that my right ankle could not serve me.
My left hand has been my lifelong workhorse. She has been called to make up for the many times when my right hand could be of no service to me. I am scared by little. Yet, the onset of what I now know to be intentional tremors in my left hand rendered me speechless--a feat for anyone who knows me. Intentional tremors. The more I intend to do a given task when I am nervous, the shakier my left hand becomes.
Intentional tremors made essential the honoring of my body parts, and their service to me. I took for granted that my left hand would be at my service, at full strength, throughout my life to meet whatever need I had. Intentional tremors called my right arm and hand to service, as a steadying force.
Intentional tremors were the sign of the first part of spirituality of the body--spirituality of my body. I had to identify--I had to come to terms with--what my body parts could do. How could my body parts serve me? That was the first step.
Honoring my body parts. What does that mean? What does it call me to do?
When I honor my body parts, I must humble myself. I must confess, "What is it that my body part can no longer do? Honoring my body parts, committing myself to confession is not the end. It is the second of a three-step process that continues throughout our lives as we age.
We argue about terms regarding people whose bodies do not function as most people's bodies do. Yet, we have not elevated our understanding to a betrayal of our human body parts to our minds, and spirituality of the human body--the spirituality of our human body. The closest example of spirituality of the human body may be found in the writing of theologian Jean Vanier. If you have never read his writings, I commend him to you.
But, the writing of Jean Vanier does not go far enough. Or, how we read Jean Vanier does not challenge us to examine our own bodies as worthy of having spirituality appended to it. We can separate his comments and compartmentalize them as applying to the residents of L'Arche, and no one else. Whenever we receive communion, we speak of the Body of Christ. Yet, we do not bring our human body to communion with us.
Clinical inventory of our body parts. Physicals, medical tests, and other medical examinations require of us little more than to go skin deep. That is, in and of themselves. Yet, if we are wholly attuned to our human body parts, we are called to go much deeper--far deeper than skin deep.
Glorification of the body. Glorification of the body may be found in two different places--in the media, and in fine art. Glorification of the body may have positive or negative impacts in the media or in fine art. Both need our attention--our open-mindedness.
Spirituality of the human body...spirituality of the human being.
How can we ascend to--advance to--a spirituality of our body parts--a spirituality of our human body-- if we separate our human body as we enter the door of the church, or if we separate the whole notion of spirituality when we open the door to leave the church?
Can we read Julian of Norwich and choose to engage in some form of spirituality regarding our human body? If we accept the invitation Julian of Norwich offers us, can we develop a spirituality of our human being? I am not saying that it is necessary to go as extreme as Julian did. That is not the point. .Yet, are we willing to go further than we have gone up until now? I continue to press the issue, because I believe it is possible--it is essential.
Respect. Respect for life. Respect for the life I have been given to live. How does my body serve me? How may I honor my body? How may I serve my body, so as to preserve and honor her gift--her gifts? Am I willing to commit myself to pursuing a spirituality of my human body--a spirituality of my human being?
Saturday, April 23, 2011
Belittlement. Respect for Life.
Once again, this afternoon, belittlement reared its ugly head, or so it felt. I try to live with respect for different religious perspectives than my own--there is good to be found in all world religions. I try to resist temptation--the temptation to be defensive--to say, "don't you know me well enough to know the serious reflection I bring to living a life of faith?"
Ironically, a discussion of "respect for life,"--mutual sadness that the breadth of the term does not seem to be a part of its use--led to the derivation of the story of Maundy Thursday, and the actual events of the story.
Our agreement regarding the narrow use of "respect for life" in some discussions was missed. A precious opportunity was missed.
Taking biblical stories literally, or symbolically became a "gotcha" moment. My antenna went up. "Quick, an attempt of entrapment is forthcoming."
I succumb to defensiveness. "Many Catholics take a broader view. Not every Catholic view 'respect for life' narrowly." A defensive volley was lobbed back at me--reference to those who do have "a simple faith--a simplistic Catholic view."
I grieve. I mourn. Three people of integrity. Trapped in different ages of the same Church. Pushed away...Drawn into...a Universal Church. Different faces. The same heart.
There is good to be found in all faith traditions. "Affirm, defend and promote the supreme worth and dignity of every human [being]. I mourn. All three are members of the Universal church.
"Support the free and disciplined search for truth..." Though packaged differently, at the core, Universalist, and Catholic search for truth with the same depth of commitment.
There are differences--important differences. I mourn. Yet, in my mourning, I question--do important differences preclude unity? Do important differences preclude a unified pursuit for truth made the stronger by the diverse perspectives of the same truth? Do the important differences preclude embracing the truth in Paul's words to the Corinthians?
"So faith, hope, love remain, these three; but the greatest of these is love."
Ironically, a discussion of "respect for life,"--mutual sadness that the breadth of the term does not seem to be a part of its use--led to the derivation of the story of Maundy Thursday, and the actual events of the story.
Our agreement regarding the narrow use of "respect for life" in some discussions was missed. A precious opportunity was missed.
Taking biblical stories literally, or symbolically became a "gotcha" moment. My antenna went up. "Quick, an attempt of entrapment is forthcoming."
I succumb to defensiveness. "Many Catholics take a broader view. Not every Catholic view 'respect for life' narrowly." A defensive volley was lobbed back at me--reference to those who do have "a simple faith--a simplistic Catholic view."
I grieve. I mourn. Three people of integrity. Trapped in different ages of the same Church. Pushed away...Drawn into...a Universal Church. Different faces. The same heart.
There is good to be found in all faith traditions. "Affirm, defend and promote the supreme worth and dignity of every human [being]. I mourn. All three are members of the Universal church.
"Support the free and disciplined search for truth..." Though packaged differently, at the core, Universalist, and Catholic search for truth with the same depth of commitment.
There are differences--important differences. I mourn. Yet, in my mourning, I question--do important differences preclude unity? Do important differences preclude a unified pursuit for truth made the stronger by the diverse perspectives of the same truth? Do the important differences preclude embracing the truth in Paul's words to the Corinthians?
"So faith, hope, love remain, these three; but the greatest of these is love."
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Tuesday, April 12, 2011
Understanding's--Compassion's---Scope
The wait for a wheelchair continues. Work with the vendor of the wheelchair, and the insurance company advocate continues. The need is unrelenting. The work seems without end--without a tangible result.
I am a reasonable, logical, peaceful woman. I am not comfortable being aggressive in stating my proven needs--my proven need.
Friends, family, and acquaintances recognize my need, and offer the compassion ever so helpful as I strive toward my goal--a wheelchair. I never imagined--I resisted--my need for a wheelchair. Time, and my ankle convince me otherwise.
I try to draw on my natural tendencies to achieve my goal--a wheelchair. Logical. I identified the steps necessary to secure a wheelchair. An accounting of my physical symptoms, and capacities, a doctor's mobility assessment, an insurance company advocate, a medical vendor acceptable to the insurance company.
Reasonable. I listened to the doctor's recommendations. I spoke with the insurance company advocate. I visited the medical vendor. I tried wheelchairs likely to meet my needs. I maintained constant contact with the advocate, and the medical vendor.
Aggressiveness expresses itself in cries of desperation from me. Threats to change vendors. Yet, aggressiveness, and threats help no one.
Working to secure a wheelchair in the last three-and-a-half months lead me back to a lifelong question. First, is it reasonable to expect that another human being may understand basic human needs, and life circumstances that may not be their own? Second, is it true that no one may understand my/our human needs, because my/our life circumstances are not theirs?
I am either a foolish optimist, or an optimistic fool. Maybe both. I hate to think that none of us may understand the basic human needs of another person, or persons, because our life circumstances are different--are not identical.
Is it possible to surmount seeming indifference to those basic human needs? If so, how?
My default has been that indifference is surmountable. I begin with logical appeals. I resort to emotional appeals. I seek support, and reinforcement to identify, and pursue other courses of action.
Then, I wonder. If my need is not enough--if the need/needs of the individuals for whom I am advocating are not enough--then, how can I appeal to the self-interests of the indifferent party?
I am far beyond angry. I am exasperated. I am exhausted. I am depressed. Yet, none of these strategies, insights, or feelings has rendered a wheelchair. Anger, exasperation, exhaustion, depression serve no one. They are not effective conveyors of my emotions to the people who seem to have the resources to meet my needs.
I wonder about the appearance of my need. I am extremely grateful to be able to navigate my condominium. So, to anyone who observes me navigate just short distances, they would surmise that my need does not rise to their requisite threshold. Yet, anyone who has known me for any length of time--before I stopped working in 2009--they would know that I do not whine. I do not pull the pity card--the victim's vengeance--in my daily dealings.
How do I communicate the need that exceeds my immediate home environment? How do I communicate that my need in a dignified manner? Does pity need to be the weapon I must use to get my needs met? I am no victim--by nature, I am no victim. Yet, indifference is victimizing me unnecessarily.
I am a reasonable, logical, peaceful woman. I am not comfortable being aggressive in stating my proven needs--my proven need.
Friends, family, and acquaintances recognize my need, and offer the compassion ever so helpful as I strive toward my goal--a wheelchair. I never imagined--I resisted--my need for a wheelchair. Time, and my ankle convince me otherwise.
I try to draw on my natural tendencies to achieve my goal--a wheelchair. Logical. I identified the steps necessary to secure a wheelchair. An accounting of my physical symptoms, and capacities, a doctor's mobility assessment, an insurance company advocate, a medical vendor acceptable to the insurance company.
Reasonable. I listened to the doctor's recommendations. I spoke with the insurance company advocate. I visited the medical vendor. I tried wheelchairs likely to meet my needs. I maintained constant contact with the advocate, and the medical vendor.
Aggressiveness expresses itself in cries of desperation from me. Threats to change vendors. Yet, aggressiveness, and threats help no one.
Working to secure a wheelchair in the last three-and-a-half months lead me back to a lifelong question. First, is it reasonable to expect that another human being may understand basic human needs, and life circumstances that may not be their own? Second, is it true that no one may understand my/our human needs, because my/our life circumstances are not theirs?
I am either a foolish optimist, or an optimistic fool. Maybe both. I hate to think that none of us may understand the basic human needs of another person, or persons, because our life circumstances are different--are not identical.
Is it possible to surmount seeming indifference to those basic human needs? If so, how?
My default has been that indifference is surmountable. I begin with logical appeals. I resort to emotional appeals. I seek support, and reinforcement to identify, and pursue other courses of action.
Then, I wonder. If my need is not enough--if the need/needs of the individuals for whom I am advocating are not enough--then, how can I appeal to the self-interests of the indifferent party?
I am far beyond angry. I am exasperated. I am exhausted. I am depressed. Yet, none of these strategies, insights, or feelings has rendered a wheelchair. Anger, exasperation, exhaustion, depression serve no one. They are not effective conveyors of my emotions to the people who seem to have the resources to meet my needs.
I wonder about the appearance of my need. I am extremely grateful to be able to navigate my condominium. So, to anyone who observes me navigate just short distances, they would surmise that my need does not rise to their requisite threshold. Yet, anyone who has known me for any length of time--before I stopped working in 2009--they would know that I do not whine. I do not pull the pity card--the victim's vengeance--in my daily dealings.
How do I communicate the need that exceeds my immediate home environment? How do I communicate that my need in a dignified manner? Does pity need to be the weapon I must use to get my needs met? I am no victim--by nature, I am no victim. Yet, indifference is victimizing me unnecessarily.
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Wednesday, February 2, 2011
My Body's Betrayal
My right ankle is my Achilles' heel.
Ambushed by osteoarthritis, my right ankle refuses to allow an agile living--or so is the feat she tries to accomplish in me. Today, I am being offered a deeper understanding of betrayal--physical betrayal.
Physical betrayal? Yes. Betrayal is not limited to human interaction. Betrayal is alive and well in physical form.
Physical betrayal has two layers: acute, and chronic.
Acute physical betrayal is the sharp deviation of physical health from what is normal for a given individual. For me, last year, acute physical betrayal was sharp pain caused by bone spurs in my right ankle.
Chronic physical betrayal is the ongoing deviation from what is considered to be normal physical health. Once again, this year, my chronic physical betrayal is my Achilles' heel--my arthritic ankle. It is not sharp, unabated pain. It is stripped physical stamina, that is the physical betrayal with which I interact.
Physical betrayal requires negotiation toward a new agreement--a negotiation from which emerges a new way of living. Physical betrayal requires ongoing negotiation, not a one-time arbitration of grievances. Such would be wonderful! Such is not reality.
For me, that has meant compromise, and accommodation.
In recognition of my ankle's way of being, I am slower in my immediate speed of movement, and more deliberate in my pace of living. Most importantly, I listen--with a keen ear, I listen. I craft probing questions to ask--of my self, and of my ankle.
Of my self, I ask, "What is most important to me that I do? What gives me joy? What am I willing to do to do what is most important? What am I willing to do to make joy possible--not guaranteed, but, possible?"
Of my ankle, I ask, "What must I do? How much may I do? If I dare not to submit to your betrayal of me, how much may I do without compromise--without accommodation to you?"
My accommodations to you? First and foremost, I address you by name. I know you are a part of me on which I stand--on which I live. Second, I give you support. For now, I give you a brace--an ankle foot orthotic.
Beyond my willingness to compromise is my mental and spiritual health. My mind--my mental well-being-and spiritual being-demands that I strive for more.
I am not alone in needing to acknowledge physical betrayal. I sure hope not. I am the lucky devil for whom physical betrayal is more pronounced--easier to recognize.
I thought that I understood the terrain of accommodation. Last year, I learned that my ankle would not support my old way of living. My ankle placed demands on me. I engaged doctors in partnership toward diagnosis, and healing.
Yet, with bone spurs debrided, my mind cries out for equal time. I partner with orthotists, and insurance companies, and medical vendors to be given wheels to roll outside my ankle's limits on my feet.
Easy though it may be to do, I cannot surrender to the question of, "What is it--what activity--that I am trying to trip over my ankle to do?" I have come frighteningly close to doing so.
I am not my life's guarantor. I must resist being resistant, fierce, or defiant. I must not be submissive. I must not be a victim. My body's betrayal will continue. Her speed of acceleration is not mine to know. I must be willful without being defiant.
Ambushed by osteoarthritis, my right ankle refuses to allow an agile living--or so is the feat she tries to accomplish in me. Today, I am being offered a deeper understanding of betrayal--physical betrayal.
Physical betrayal? Yes. Betrayal is not limited to human interaction. Betrayal is alive and well in physical form.
Physical betrayal has two layers: acute, and chronic.
Acute physical betrayal is the sharp deviation of physical health from what is normal for a given individual. For me, last year, acute physical betrayal was sharp pain caused by bone spurs in my right ankle.
Chronic physical betrayal is the ongoing deviation from what is considered to be normal physical health. Once again, this year, my chronic physical betrayal is my Achilles' heel--my arthritic ankle. It is not sharp, unabated pain. It is stripped physical stamina, that is the physical betrayal with which I interact.
Physical betrayal requires negotiation toward a new agreement--a negotiation from which emerges a new way of living. Physical betrayal requires ongoing negotiation, not a one-time arbitration of grievances. Such would be wonderful! Such is not reality.
For me, that has meant compromise, and accommodation.
In recognition of my ankle's way of being, I am slower in my immediate speed of movement, and more deliberate in my pace of living. Most importantly, I listen--with a keen ear, I listen. I craft probing questions to ask--of my self, and of my ankle.
Of my self, I ask, "What is most important to me that I do? What gives me joy? What am I willing to do to do what is most important? What am I willing to do to make joy possible--not guaranteed, but, possible?"
Of my ankle, I ask, "What must I do? How much may I do? If I dare not to submit to your betrayal of me, how much may I do without compromise--without accommodation to you?"
My accommodations to you? First and foremost, I address you by name. I know you are a part of me on which I stand--on which I live. Second, I give you support. For now, I give you a brace--an ankle foot orthotic.
Beyond my willingness to compromise is my mental and spiritual health. My mind--my mental well-being-and spiritual being-demands that I strive for more.
I am not alone in needing to acknowledge physical betrayal. I sure hope not. I am the lucky devil for whom physical betrayal is more pronounced--easier to recognize.
I thought that I understood the terrain of accommodation. Last year, I learned that my ankle would not support my old way of living. My ankle placed demands on me. I engaged doctors in partnership toward diagnosis, and healing.
Yet, with bone spurs debrided, my mind cries out for equal time. I partner with orthotists, and insurance companies, and medical vendors to be given wheels to roll outside my ankle's limits on my feet.
Easy though it may be to do, I cannot surrender to the question of, "What is it--what activity--that I am trying to trip over my ankle to do?" I have come frighteningly close to doing so.
I am not my life's guarantor. I must resist being resistant, fierce, or defiant. I must not be submissive. I must not be a victim. My body's betrayal will continue. Her speed of acceleration is not mine to know. I must be willful without being defiant.
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