By passion, a
researcher. A children's museum my
workplace--my playground.
By birth, not a cradle Catholic. By pursuit, reform's seeker.
Since birth,
cerebral palsy, epilepsy. Since middle
age, osteoarthritis.
Lifelong, disability's advocate.
In common? This is my life. Cold, hard facts. Not always difficult, just cold, hard facts
to be lived--to be lived fully.
One year ago, a
wheelchair was offered to my consideration.
I wanted nothing of it.
"Think of
your needs. Not now. Not a year from now. Think of your needs five years from
now."
Still, I wanted
nothing of it. Yet, I slept on the
offering. I considered my life's cold, hard facts.
I chose--I
choose--to live with them, not die from them.
Yesterday, a
refrigerator was delivered. New. Black.
Textured. To my liking. To Zoomer's liking.
64 inches high. My
height? 64 inches. 28 inches wide. My width?
Irrelevant. 32 inches deep. My depth--my physical depth? To the refrigerator's depth.
Zoomer's
reach? The refrigerator's depth. The freezer's height.
Zoomer's
range--range of motion? Atop the
freezer's height? No.
These are the
dimensions of my life--the cold, hard facts.
But...these are the dimensions by which I am called to live--beyond the
reach of the gifts I have been given.
I am an odd futurist. Some say odd.
Others say futuristic.
I do not know
what my future will be. None of us
does. Odd though it may seem, my new
refrigerator opens a new view to the cold, hard facts by which I will be called to
live.
Covered with a
texture new to me--it is fun to touch. A
new height to test. A new depth to
reach.
"Think of
your needs. Not now. Not a year from now. Think of your needs five years from now."
I am an odd
futurist. I do not live by a clock's
ticking. My body breathes to her own
rhythm--a mystery to me. I try to live
with her, not in fear of her. Most days
I abide by her. Fewer days I succumb to
them.
I engage Zoomer
to my new refrigerator. With her, may I
reach to the depths of the cold, hard facts by which I must live? With her, may I reach beyond the gifts I have
been to live?
I do not know
what they will be. I do not know their
color. Their height.
What will the
texture of my spirit be to live by those cold, hard facts?
I pray I will abide by them, not succumb to
them.
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